Tag Archive: research studies

Dec 12 2018

All in the Family: Parents Meaningfully Engaged in Pediatric Research Consortium

Clinician-researchers in the Pediatric Research Consortium (PeRC) at Children’s Hospital of Philadelphia didn’t have to look far to find specialists to provide novel insights into their research projects: They are the families who are the experts on their children visiting CHOP’s primary care practices.

Four parents from different backgrounds, levels of education, and geographic areas partnered with PeRC in 2013 as a Parent Advisory Board to provide meaningful input to guide implementation of PeRC’s portfolio of research studies. PeRC is a 31-practice, two-state research network with 205 physicians and 41 nurse practitioners who have published about 200 peer-reviewed accepted published manuscripts over the last decade or so.

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Apr 27 2018

“Unique, Different, and Special”: Ben Hartranft Speaks Up for Autism

Nineteen-year-old Ben Hartranft remembers the first research study he participated in at the Center for Autism Research (CAR) nearly eight years ago. Though he was just 12, he didn’t feel nervous or scared about the functional magnetic resonance imaging machine that would capture images of his brain. Instead, Ben’s mom recalls him joking that the researchers could duct tape his legs to the chair to help him keep still (which, of course, wasn’t necessary).

“I just stayed still, and it was very fun,” Ben said.

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Dec 22 2016

‘Tis the Season to Thank Our Research Volunteers

Working at Children’s Hospital of Philadelphia (CHOP) during this time of year is incredibly gratifying. In the past few weeks I have heard literally dozens of stories about groups of employees coming together to raise money for charities; conduct drives for food, toys and books; work to help the homeless; and “adopt” families to ensure that children being treated at the hospital and their parents have an enjoyable holiday.

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