Tag Archive: fibrodysplasia ossificans progressiva

Apr 15 2016

CHOP Research In the News: Genetic Superheroes, Excess Bone, and Secondhand Smoke

CHOP Research NewsThis week’s stories have elements that sound like fiction, but all are real, new scientific and medical findings: A condition that turns the body’s soft tissues into bone has new hope for a future treatment. Genetic superheroes walk among us, and they may not even know it. And pediatricians may have a tool to double their success in helping their patients’ parents quit smoking.

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Oct 8 2014

Experts’ Research Leads to Rare Disease Clinical Trial

rare diseaseAs rare pediatric diseases go, Fibrodysplasia Ossificans Progressiva (FOP) is about as rare and debilitating as they come, affecting roughly one in two million people around the world.

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