Arcus is a unique data environment that will one day host many research data sets from Children’s Hospital of Philadelphia, all of which will have their own formats and regulatory requirements. As a research data privacy analyst for Arcus, Dianna Reuter, JD’s, goal is to build a house where all of those data sets — whether they’re related to human subjects research, or genomic studies, or come from abroad and are subject to other countries’ privacy laws — can have a home that is accessible but stays secure to protect privacy.
Tag Archive: ethics
The Division of Neonatology at Children’s Hospital of Philadelphia celebrated the remarkable research careers and retirement of two pioneers in neonatal research and medicine, Barbara Schmidt, MD, and Haresh Kirpalani, MD, with a clinical research symposium May 9 and 10. Held at the Union League of Philadelphia, the event brought together the world’s leading experts in neonatal research and evidence-based medicine, many of whom have worked closely with Drs. Schmidt and Kirpalani as trainees, co-authors, and colleagues in the last few decades.
Researchers at The Children’s Hospital of Philadelphia Research Institute are always curious as they explore uncharted territories and tap new technologies. Read about the many novel ways they are looking to improve children’s health in the February issue of Bench to Bedside.
As promised, here is PBS’s Religion and Ethics Newsweekly’s piece on the work of Drs. Ian D. Krantz and Nancy B. Spinner. Enjoy!
Stay tuned! The work of married CHOP geneticists Ian D. Krantz, MD, and Nancy B. Spinner, PhD, will be featured on PBS’s Religion & Ethics Newsweekly this Friday, January 25. The program will air online ahead of its being shown on television.
After a decade of work and at an expense of nearly $3 billion, the sequencing of the human genome was completed in 2003. Advances since then have made individual sequencing much more widely available — an individual’s genome can now be sequenced in months, for a few thousand dollars.