Tag Archive: DBHi

Mar 25 2019

Greater Access, Greater Information, Greater Responsibility: Q&A With Dianna Reuter, JD

Arcus is a unique data environment that will one day host many research data sets from Children’s Hospital of Philadelphia, all of which will have their own formats and regulatory requirements. As a research data privacy analyst for Arcus, Dianna Reuter, JD’s, goal is to build a house where all of those data sets — whether they’re related to human subjects research, or genomic studies, or come from abroad and are subject to other countries’ privacy laws — can have a home that is accessible but stays secure to protect privacy.

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Feb 28 2018

Better Biobanking a Best Bet for Rare Disease Research

Editor’s Note: Families facing a rare disease diagnosis often do not know where to turn first in their search for the most advanced treatments and potentially a cure for their children. Only 5 percent of rare diseases have a treatment approved by the Food and Drug Administration, according to the National Organization for Rare Disorders. This is due in part to the lack of high quality biospecimens for research.

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Jun 7 2016

Lots to Cheer About in Bench to Bedside

Bench to BedsideYippee! Hooray! Woo-hoo! We’d like to take a few moments to celebrate the recent accolades given to scientists and physician researchers at The Children’s Hospital of Philadelphia Research Institute who are featured in the latest issue of Bench to Bedside, our monthly newsmagazine.

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