This first of December, we’re recognizing World Aids Day by sharing the latest research from Children’s Hospital of Philadelphia investigators who partnered with the University of Pennsylvania, the University of Botswana, and the Botswana Ministry of Health through the Botswana-UPenn partnership, in order to address sub-Saharan Africa’s HIV/AIDS epidemic. Alongside their findings published last week, our news roundup also includes special congratulations to Diva De León-Crutchlow, MD, on a “sweet” new award from Congenital Hyperinsulinism International, and novel research findings from our investigators who study cardiology, genetics, and puberty.
The rapid translation of research results into new products, policies, and programs is a key part of the Center for Child Injury Prevention Studies’ (CChIPS) mission to spur innovations that keep children safe and healthy.
Each year, the Industry Advisory Board (IAB) of the CChIPS funds a portfolio of child safety-focused research projects. During the 2016-2017 CChIPS project year, the IAB funded 13 completed projects, spanning areas of focus including child-restraint design and performance, consumer/driver behavior, crash avoidance and autonomous vehicles, vehicle restraint performance, and crash test dummy biofidelity. Snapshots of these projects are available in the newly released 2017 CChIPS Annual Report: “Safe and Sound.”
Our days and weeks are packed – sometimes to the point of overflowing – with projects, meetings, and the regular day-to-day work that propels our discoveries and supports our investigators and their teams.
In the midst of being busy today and planning for tomorrow, it’s important for me to take a moment to express my gratitude to everyone for what they do to support the CHOP Research Institute.
While funding is certainly a critical factor in our flourishing research program, it has little significance without you – our innovative investigators and research teams, our dedicated support staff, our generous donors, and our inspiring patients and families. I am thankful for each and every one of you for your tireless support. Regardless of how you support the Research Institute – through your work, generosity, advocacy, and goodwill – please know that we could not accomplish what we do without you.
Around seven years ago during a well visit at Children’s Hospital of Philadelphia, a 12-year-old boy told Saba Khan, MD, an attending physician at CHOP, that there was one problem she could not fix. Intrigued, Dr. Khan asked him to explain further. At first hesitant, the young man finally explained what he meant. He had a pain in his belly that never went away, and he knew exactly what that pain was: Hunger. “I’m always hungry,” he said to Dr. Khan.
Dr. Khan was floored. At the time, she was unfamiliar about how to address the issue of food insecurity because she had not yet encountered it in primary care practice.
Art meets medicine and cell phones support skin diagnoses in this week’s roundup of research news at Children’s Hospital of Philadelphia, as our latest headlines show science can find the best partners in unlikely places. Along with a creative study on the power of art observation for ophthalmology led by Gil Binenbaum, MD, MSCE, pediatric eye surgeon at CHOP, we also cover updates from researchers developing a teledermatology app, learn about novel pathways in the gene mutations that cause hearing loss, and congratulate Vinay Nadkarni, MD, on his latest honor from the American Heart Association.
Editor’s Note: Our guest blogger, Ayana Bradshaw, MPH, is the administrative director for the Center for Injury Research and Prevention and the Violence Prevention Initiative at Children’s Hospital in Philadelphia, serving in this role for the past five years. She joined CIRP in 2006 as the center coordinator for the Philadelphia Collaborative Violence Prevention Center where she was responsible for the day-to-day operations of a Centers for Disease Control and Prevention violence prevention program.
From the time Antonio Rosato was diagnosed with Duchenne muscular dystrophy (DMD) at age 4½, his family was eager for him to participate in a clinical research trial. They wanted to give him access to the latest advances in pharmacological and disease management approaches for DMD, an opportunity that Antonio’s uncle Artie, who was diagnosed with the same neuromuscular disease four decades ago, did not have.
A cardiac intensive care unit (CICU) filled with tiny infants connected to collections of tubes and buzzing monitors can be an intimidating and overwhelming place for a mother who is worried about her newborn with congenital heart disease (CHD). A Children’s Hospital of Philadelphia team of nurse researchers conducted a qualitative study in which mothers of babies who have a complex heart condition described the post-diagnostic period, surgery, and the CICU stay as extremely stressful. The researchers also examined mothers’ coping mechanisms, and they identified mindfulness as a potential helpful early intervention tool to reduce mothers’ stress.
As the November chill settles in, warm up to new scientific discoveries and novel projects for improving children’s health from our researchers at Children’s Hospital of Philadelphia. In our roundup of research headlines, we share the latest findings on the biology of pediatric low-grade gliomas – the most common childhood brain tumor – congratulate Christopher Forrest, MD, in his role as co-investigator of a new FDA-funded clinical trials network, and give you the highlights on two new papers from researchers in mitochondrial medicine and cardiology.
Editor’s Note: Our clinical research coordinators at Children’s Hospital of Philadelphia are a unique professional hybrid. Part researcher, healthcare professional, data coordinator, social worker, personal coach, and travel concierge, they go above and beyond their job descriptions in order to help families navigate the complexities of participating in clinical research studies. We invited Joshua Zigmont, RN, BSN, who has been a nurse research coordinator for seven years, to describe a typical day on the job. The first thing he told us is that the most consistent thing about the position is its inconsistency: “You have to be flexible because you never know when a curveball is coming,” Zigmont said. So while no day is ever typical, here is a glimpse of a day in the life of a clinical research coordinator.