A network of children’s hospitals, data partners, and specialty networks led by The Children’s Hospital of Philadelphia was recently approved for an award from the Patient-Centered Outcomes Research Institute (PCORI) to develop and expand its work as part of PCORnet: the National Patient-Centered National Clinical Research Network. PEDSnet, A National Pediatric Learning Health System, was one of 28 multi-institutional and patient-powered research networks approved for a total of $93.5 million from PCORI on December 17 to form this new national resource that aims to boost the efficiency of health research.
PEDSnet combines a clinical data research network — including eight of the nation’s largest children’s hospital systems — with three condition-specific networks and two national data partners. Led by The Children’s Hospital of Philadelphia, PEDSnet is also comprised of Cincinnati Children’s Hospital Medical Center, Children’s Hospital Colorado, Nemour’s Children’s Health System, Nationwide Children’s Hospital, St. Louis Children’s Hospital, Seattle Children’s Hospital, and Boston Children’s Hospital. The specialty networks include the National Pediatric Cardiology Improvement Collaborative and ImproveCareNow, as well as a new childhood obesity network. The data partners are Express Scripts and the health analytics company IMS Health.
The Children’s Hospital of Philadelphia’s Christopher Forrest, MD, PhD, who is also a Professor of Pediatrics at the Perelman School of Medicine at the University of Pennsylvania, serves as the principal investigator of PEDSnet, which is set to combine its efforts with 10 other clinical data research networks in PCORI’s new PCORnet. Focused on comparative effectiveness research, PCORI has awarded a total of $464.4 million since it began funding comparative effectiveness research in 2012.
PCORnet will be a secure, national data network that will improve the speed, efficiency, and use of patient-centered comparative effectiveness research, PCORI says. By integrating data available in the individual networks, PCORnet aims to provide access to a large amount of diverse, nationally representative health information that can support a range of study designs. The network will reduce the time and effort needed to launch new studies and focus research on questions and outcomes especially useful to patients and those who care for them.
“The Children’s Hospital of Philadelphia is thrilled to lend its efforts to PCORnet,” said Philip R. Johnson, MD, chief scientific officer and executive vice president of CHOP Research. “Multidisciplinary collaborations like this, that help researchers share findings and speed investigations, will help move innovative research from the bench to bedside and improve the care of children and families worldwide.” To read more about CHOP’s involvement in PCORnet, see the full press release. And for more information about PCORI, see the Institute’s website.