Arcus is a unique data environment that will one day host many research data sets from Children’s Hospital of Philadelphia, all of which will have their own formats and regulatory requirements. As a research data privacy analyst for Arcus, Dianna Reuter, JD’s, goal is to build a house where all of those data sets — whether they’re related to human subjects research, or genomic studies, or come from abroad and are subject to other countries’ privacy laws — can have a home that is accessible but stays secure to protect privacy.
Category Archive: Department of Biomedical and Health Informatics
Editor’s Note: Families facing a rare disease diagnosis often do not know where to turn first in their search for the most advanced treatments and potentially a cure for their children. Only 5 percent of rare diseases have a treatment approved by the Food and Drug Administration, according to the National Organization for Rare Disorders. This is due in part to the lack of high quality biospecimens for research.
Around seven years ago during a well visit at Children’s Hospital of Philadelphia, a 12-year-old boy told Saba Khan, MD, an attending physician at CHOP, that there was one problem she could not fix. Intrigued, Dr. Khan asked him to explain further. At first hesitant, the young man finally explained what he meant. He had a pain in his belly that never went away, and he knew exactly what that pain was: Hunger. “I’m always hungry,” he said to Dr. Khan.
Dr. Khan was floored. At the time, she was unfamiliar about how to address the issue of food insecurity because she had not yet encountered it in primary care practice.
Nobody enjoys sitting in a doctor’s waiting room, especially when they have an uncomfortable skin condition. A Children’s Hospital of Philadelphia study team tested a direct-to-consumer mobile app designed to facilitate routine dermatologic consultations for children and adolescents. The pilot study results showed the telemedicine technology was acceptable, easy to use, and expedited care.
The end of the year has come up fast, and so have important advances in pediatric research at Children’s Hospital of Philadelphia. This week’s In the News starts off with a celebration of two remarkable patients and their dedicated pediatric oncologist.
August is perfect for lazy summer days, but our pediatric research news never rests. So whether you’re lounging by the pool or relaxing in a shady hammock, pull up In the News to find out the science that is hot at The Children’s Hospital of Philadelphia.
This week we’re excited to report on a second award for an innovative technology solution to access, filter, and harness emerging disease updates.
Yippee! Hooray! Woo-hoo! We’d like to take a few moments to celebrate the recent accolades given to scientists and physician researchers at The Children’s Hospital of Philadelphia Research Institute who are featured in the latest issue of Bench to Bedside, our monthly newsmagazine.
This week’s stories from The Children’s Hospital of Philadelphia include the use of big data to understand a tiny molecular mechanism central to how cells function, a clinical trial of video games for improving attention, and the neurodevelopmental effects of so-called “smart drugs.”
Dr. Tan, a cancer genomics and bioinformatics researcher, joined The Children’s Hospital of Philadelphia in January. Within weeks of his arrival, Vice President Joe Biden launched the cancer “moonshot” initiative during a visit with cancer researchers from the University of Pennsylvania and CHOP at Penn’s Abramson Cancer Center.