Nov 20 2017

Researchers Get to the Root of Hunger in Primary Care

Around seven years ago during a well visit at Children’s Hospital of Philadelphia, a 12-year-old boy told Saba Khan, MD, an attending physician at CHOP, that there was one problem she could not fix. Intrigued, Dr. Khan asked him to explain further. At first hesitant, the young man finally explained what he meant. He had a pain in his belly that never went away, and he knew exactly what that pain was: Hunger. “I’m always hungry,” he said to Dr. Khan.

Dr. Khan was floored. At the time, she was unfamiliar about how to address the issue of food insecurity because she had not yet encountered it in primary care practice.

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Nov 17 2017

Artful Thinking, Teledermatology App, Genetic Mutations in Hearing Loss, Dr. Vinay Nadkarni

Art meets medicine and cell phones support skin diagnoses in this week’s roundup of research news at Children’s Hospital of Philadelphia, as our latest headlines show science can find the best partners in unlikely places. Along with a creative study on the power of art observation for ophthalmology led by Gil Binenbaum, MD, MSCE, pediatric eye surgeon at CHOP, we also cover updates from researchers developing a teledermatology app, learn about novel pathways in the gene mutations that cause hearing loss, and congratulate Vinay Nadkarni, MD, on his latest honor from the American Heart Association.

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Nov 15 2017

Powerful Collaborations Coalesce When the Research World Meets the Real World

Editor’s Note: Our guest blogger, Ayana Bradshaw, MPH, is the administrative director for the Center for Injury Research and Prevention and the Violence Prevention Initiative at Children’s Hospital in Philadelphia, serving in this role for the past five years. She joined CIRP in 2006 as the center coordinator for the Philadelphia Collaborative Violence Prevention Center where she was responsible for the day-to-day operations of a Centers for Disease Control and Prevention violence prevention program.

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Nov 13 2017

Strengthening Duchenne Muscular Dystrophy Research: Antonio Rosato

From the time Antonio Rosato was diagnosed with Duchenne muscular dystrophy (DMD) at age 4½, his family was eager for him to participate in a clinical research trial. They wanted to give him access to the latest advances in pharmacological and disease management approaches for DMD, an opportunity that Antonio’s uncle Artie, who was diagnosed with the same neuromuscular disease four decades ago, did not have.

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Nov 8 2017

Is Mindfulness Important for Mothers of Babies With Heart Conditions?

The Findings:

A cardiac intensive care unit (CICU) filled with tiny infants connected to collections of tubes and buzzing monitors can be an intimidating and overwhelming place for a mother who is worried about her newborn with congenital heart disease (CHD). A Children’s Hospital of Philadelphia team of nurse researchers conducted a qualitative study in which mothers of babies who have a complex heart condition described the post-diagnostic period, surgery, and the CICU stay as extremely stressful. The researchers also examined mothers’ coping mechanisms, and they identified mindfulness as a potential helpful early intervention tool to reduce mothers’ stress.

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Nov 3 2017

Weight and CHD, Tumor Biology, I-ACT Grant, Mitochondrial Disease Guidelines

As the November chill settles in, warm up to new scientific discoveries and novel projects for improving children’s health from our researchers at Children’s Hospital of Philadelphia. In our roundup of research headlines, we share the latest findings on the biology of pediatric low-grade gliomas – the most common childhood brain tumor – congratulate Christopher Forrest, MD, in his role as co-investigator of a new FDA-funded clinical trials network, and give you the highlights on two new papers from researchers in mitochondrial medicine and cardiology.

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Oct 31 2017

A Day in the Life of a Clinical Research Coordinator

Editor’s Note: Our clinical research coordinators at Children’s Hospital of Philadelphia are a unique professional hybrid. Part researcher, healthcare professional, data coordinator, social worker, personal coach, and travel concierge, they go above and beyond their job descriptions in order to help families navigate the complexities of participating in clinical research studies. We invited Joshua Zigmont, RN, BSN, who has been a nurse research coordinator for seven years, to describe a typical day on the job. The first thing he told us is that the most consistent thing about the position is its inconsistency: “You have to be flexible because you never know when a curveball is coming,” Zigmont said. So while no day is ever typical, here is a glimpse of a day in the life of a clinical research coordinator.

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Oct 27 2017

Friedreich’s Ataxia Community Stays on Top of Science and Stays in Touch

Patients and families dealing with the rare, debilitating disease Friedreich’s Ataxia showed their true strength at the 10th Annual Friedreich’s Ataxia Symposium held in King of Prussia, Pa. The FA community is a steadfast supporter of research, and they have been gathering for a decade to spend a day with each other building friendships and learning the most up-to-date information on the therapeutic approaches and scientific studies being conducted in the field of FA.

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Oct 24 2017

Invite to Innovation: Penn Health-Tech Bridges Gaps in Medical Device Ecosystem

How do you turn an idea into an invention, a discovery into a device, or a project into a product that will impact how we care for children and drive innovation? Whether it’s finding funding, partnering with the right team members, or accessing the most effective resources, researchers and entrepreneurs face many barriers before they’re able to bring an idea to the bedside. With the launch of the new Center for Health, Devices, and Technology (Penn Health-Tech), faculty members at Children’s Hospital of Philadelphia now have the opportunity to access a main ingredient that helps to break through many of those barriers: connections.

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Oct 20 2017

Flaura Winston NAM Election, Philadelphia Pediatric Medical Device Consortium, SeeIV, Boyle Scientific Achievement Award

At Children’s Hospital of Philadelphia, our investigators are continuously helping to develop evidence-based technology that will improve the way we care for and protect children’s health. And in this week’s headlines, we’re seeing that happen in more ways than one. From the creation of devices that will make the lives of clinicians and patients easier, to providing seed grants for novel innovations through the Philadelphia Pediatric Medical Device Consortium, to informing safe practices for technology through renowned organizations like the National Academy of Medicine, we invite you to keep reading to learn what our researchers are up to!

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