Tag Archive: Orphan Disease Center

Jul 28 2017

Psychology in Media Award, Targeted Cancer Drugs, Dermatology App, CHOP ROP Model, Beckwith-Wiedemann Conference

Read on for more exciting headlines from this week, including highlights from our inaugural “Deciphering Beckwith-Wiedemann Syndrome” conference.

Permanent link to this article: http://blog.research.chop.edu/in-the-news-psychology-media-award-targeted-cancer-drugs-dermatology-app-chop-rop-model-beckwith-wiedemann-conference/

Jul 27 2017

CHOP Hosts Deciphering Beckwith-Wiedemann Syndrome Conference

It was weekend of firsts on many fronts, as physicians, genetic counselors, nurses, researchers, and families gathered July 21–23 at Children’s Hospital of Philadelphia Research Institute for the inaugural Deciphering Beckwith-Wiedemann syndrome (BWS) conference. BWS is a rare overgrowth disorder involving genetic and epigenetic changes that occur approximately every one in 10,500 births.

Permanent link to this article: http://blog.research.chop.edu/chop-hosts-deciphering-beckwith-wiedemann-syndrome-conference/